Lydia Grace

Lydia Grace
Our first child, Lydia Grace

Tuesday, December 14, 2010

Snips and Snails and Puppy Dog Tails

And we have a baby boy!
(with 95% certainty, I should say) A girl and a boy. Pretty perfect. I knew it was a boy. Just like I knew Lydia was a girl. Good intuition: two out of two.




Today was my perinatologist appointment at 13 weeks. It went very well. A DVD of the entire sonogram was recorded (30 minutes) and we have many pictures from the sono. Everything is developing normally...10 fingers accounted for, good heartbeat and heart formation, brain and spine and limbs look good (hmmmm....I feel like I was saying this just a few months ago about our other child...).  
The perinatologist also recommended the anticoagulant daily injections. We just need to figure out how to pay for it. She said she is more concerned not only because of Lydia's stillbirth, but also because I have two bad copies of MTHFR that coupled with low Protein S has greater potential for blood clotting problems.



I feel guilty for not being more excited. With each doctor's appointment I feel more relief than excitement. When I was pregnant with Lydia, each doctor's appointment, the sonograms, every time we'd hear her heartbeat, I was excited. Now I breathe a sigh of relief. And hold my breath for the next appointment. I am an anxious person. Add experience with that and these positive reports from the doctors are wonderful to hear, but do not alleviate my anxiety and concern. Every single one of Lydia's appointments went well. We had no signs of problems. Two weeks before she was stillborn, everything looked great.



I'm not saying I am not thankful each time. I am very thankful nothing is wrong with the baby; that the only problem identified is a problem with me, not him. I am grateful he is growing healthy and we are not having any serious complications. Thank You, Lord.

Wow, a boy! 
And how I miss my baby girl! 

Saturday, December 11, 2010

Christmas

We are in the midst of the holiday season...

   This was to be our first Christmas with our daughter. Now it's the first of...15? 40? 60? without us together. I have little interest in any usual holiday traditions and activities. My husband and I did put up a small Christmas tree. I am hanging a stocking for Lydia. I plan to put some items in it. I also ordered a family Christmas card with a collage of pictures. I signed it with the names of those in our family (my husband and I, Lydia, Baby Curtis, and our two dogs).
   We attended M.E.ND. 's Candlelight Service on Tuesday. It was a smaller gathering with music, a message, and the opportunity for each family to walk to the front of the chapel, say the name of the child/children they had lost, and light a candle in their memory. I choked up and it broke my heart when I said our baby's name, but it means so much for her to be remembered. It was also nice to have a Christmas event with other parents who have lost babies, who understand.
   I have not decided what family events I am ready to attend this year. I do not want to see other people laughing and being happy and sharing Christmas with their family and children. That sounds very bitter...it is not that I wish others to be unhappy, it is just painful for me to see their joy while being in such pain. Is that too selfish? Perhaps it is. I want to yell that I lost my baby four months ago and I am not happy this Christmas, that this is not the most wonderful time of the year, and I do not want to have to put a smile on to be social. I do not want this Christmas to continue as if nothing has happened when our lives will never be the same. Participating in the usual activities feels like Lydia's death is being dismissed, not honored, forgotten...I am not sure how to express it. I stated that incorrectly: I feel like Lydia, her life, her memory is being dismissed, not honored and forgotten. As her mother it feels like a betrayal.
   So I think my husband and I are going to stay at home this Christmas. I have always been a traditionalist about everything Christmas. None of that seems to matter now. I plan to attend our church Christmas Eve service and cook a nice dinner for my husband and I. Christmas day I do not know what to do. I have not shared my plans with my family (who will likely expect us for the holiday).

I'm filled with questions this Christmas...

What do you do the first Christmas after burying your child? 

How do you acknowledge the celebration of Christ's birth, but do not participate in any of the usual celebrations? 

How do you watch other families with their children when you can't hold your child? 

How do you watch gifts exchanged with none for the baby you expected but lost?

How can you sing carols when tears are about the only words you have sung for months? 

How do you talk with people who feel the joy of the holiday season when you have feel dead inside? 

When you should have a baby in your arms at Christmas dinner and they are empty?

When a stocking is hung in memory of your child rather than for your child's pleasure? 

When the plans you had months ago will never happen?

When your heart is broken but the world keeps moving on?



Friday, December 3, 2010

memories

   Yesterday I needed to go up to the hospital, to the women's center. I was not thinking about the implications of where I was going until I saw the front of the building. I began to sob. I parked my car, sat in it, and cried. I had not been there since the day of Lydia's birth. 
   I had such a strong, unexpected emotional reaction. It was like reliving those memories. Walking into the building and down the hall was challenging. Once I arrived in the labor & delivery area, everything seemed unfamiliar. The locked double doors leading into the area were something I do not recall seeing. The hallways were hallways I'd never seen before. I did not recognize the nurse's station. It was a strange experience. Walking out the front doors after the visit brought up painful memories of the day I left without Lydia. Rough morning. 



Wednesday, December 1, 2010

Tear Soup

Let's start with good news: yesterday my husband and I heard our baby's strong heartbeat at 170 beats per minute! Praise the Lord!

Also at yesterday's OB appointment, results from the blood work I had done 3 weeks prior had arrived. I have two mutated copies of MTHFR. As a result I am on a different prenatal vitamin with a specific type of folic acid not found in your standard prescription prenatals to help with the folic acid problem MTHFR causes. I also have a protein S deficiency, treatment for that isn't as painless as a pill. I'll be giving myself daily injections for the duration of the pregnancy. We also discussed some other problems and issues. More testing and further decisions about treatment will be made soon after my perinatologist appointment. It is a pressure and a little anxiety provoking, yet I feel a sense of relief to have something to do that may prevent another loss.

My longsuffering, ever thoughtful husband gave me an early Christmas gift yesterday evening when we got home from the doctor. A book: Tear Soup. It is the best book I have read in a long time. It's an illustrated children's book with a deep meaning I could definitely identify. I love reading things that express how I feel when I don't have the words. The full title is Tear Soup: A Recipe for Healing after Loss. I highly recommend it to everyone. If you can find it in a library or next time you are in a bookstore, check to see if it's there. It's short and can be read in the store. You should read it.

Time to keep making my Tear Soup.

Tuesday, November 23, 2010

Mother of Two: Part 2



 I felt pregnant before I had a positive pregnancy test. I could feel the change in my body. The first home test I took was negative. Five days later, on October 10, I took another test. It was positive! So begins months of anxiety and doctor appointments. We are very excited and joyful, more than I can express, but the fear is very real. 

   I have had 3 sonograms, 11 tubes of blood drawn, and 3 OB appointments thus far. I feel like I am checking things off a list: 
1. first sono showed very little, but we established the embryo was attached to the uterine wall, no ectopic pregnancy = in the right place - check
2. second sono we were able to see the heartbeat = heartbeat, things are going ok
3. third sono we were able to hear the heartbeat and see the arm buds and leg buds = our baby is developing

    I have had morning sickness. Extreme fatigue is plaguing me. I can sleep 10 straight hours at night, but half way through the work day it is all I can do to stay awake, much less focused. I cannot stop thinking about going to bed. I fight the urge to curl up on my desk and give way to sleep that my body demands. 
  Yes, I am enjoying every minute. Honestly, every day I am thankful to have one more day with my baby for I do not know when it will be the last. As far as I know baby is healthy and developing and I am grateful for throwing up and being exhausted and the other complications. 


Excited! 




Thanks for all the congratulatory comments and support!!!

Monday, November 22, 2010

Mother of Two: Part 1

I'm pregnant!

  Yes, I am 10 weeks pregnant (technically tomorrow I will be 10 weeks). This sweet baby is due June 21st. We are incredibly excited and joyful for God to have blessed us with another child. We were going to wait to share our news with everyone, but (1) I am already starting to show and (2) the immediate family we did share our news with have already told more people than I would ever dream of telling. I needed to say something before others shared our news.

   "Rejoice with those who rejoice, weep with those who weep" (Romans 12:15)

---you've got to be around for both---

   It is difficult to hear excitement from people whom neither my husband or I told we were pregnant and have not shared in our sorrow. One woman expressed her excitement to host a baby shower. She did not know about Lydia and I was unaware she knew I was pregnant. I am no where near a place to begin thinking about baby showers. (Can we do that after this little one safely arrives?) Then there are people with whom we have planned to share our news, only to find out they have already been told. It makes me angry and annoyed. More so when it is someone who is unaware of our loss or was not supportive with the loss of our child. Too much joy and excitement from others is too much for me. My husband said it was not fair to tell people and ask them to keep it a secret. So I did not tell anyone not to share our news, I just assumed (never smart) that others would understand it is OUR news. The emotions are really compounded with the loss of Lydia.

   The two most prevalent reactions I have heard are as follows:

Isn't it too soon? I've been asked if it is safe for me to be pregnant, is my body ready, is it alright with my OB, isn't it too early emotionally/physically, will being pregnant so soon increase my risk of loss...
You are neither my OB nor my husband, do not tell me when is the right time to be pregnant.

I'm so excited! I am so happy for you, this is wonderful, this will make everything better. No. I will never have my daughter I lost. I want her and this baby. This little one is her/his own person. She/he is not a replacement. Being pregnant has not ended my grief.

  Then there are both reactions from the same person: "Oh, I am so excited! Are you sure it's ok? This will be so great, things will be great! Did you doctor say it was okay for you to be pregnant so soon?"


   Ah, dealing with people.

I dislike reading extremely long blogs, so to be kind to me readers I am ending this blog now and will continue with my pregnancy story on the next blog post.

Thursday, November 18, 2010

My favorite photos









I was really missing my baby today, so I thought I would post a few pictures.
Photos taken courtesy of Now I Lay Me Down to Sleep